We’ve been home for four nights, and can we just say how wonderful it feels to be home!
It still feels so unbelievable that Leo had heart surgery two weeks ago, as he is almost completely back to his normal self. I say almost as he has been having separation anxiety, which is expected from kids after surgeries and hospital stays. He is also super cuddly and loves to take naps with us. Loving that part! He has also been sleeping WAY better at night…only waking up once or twice for a feed. What a blessing that is!
Leo is still getting feeds from a NG (nasogastric) tube. It takes a bit more time, but we are getting use to it, and it is working pretty well (except that one time where we had to re-insert his NG tube at 4:30 in the morning, lol). He’ll have the NG tube until December 12th.
Since we are back home, Sick Kids referred us to a local CCAC group and today we had our first nurse come and visit us to see how we are all doing. The next nurse visit will be on Tuesday. We also will be heading back to Sick Kids for a post-op visit on Thursday, November 7th.
Did we say how strange it feels that Leo’s surgery is over? We have been waiting for over a year for it to happen, and now that it has it seems unreal. It still feels like we are waiting for more surgery, but that might be the only surgery Leo will ever need (besides pacemaker ones). Crazy, eh?
We are praying that his check-ups will go well, and that perhaps in this next year we can pursue a trip to visit our beloved friends and family in Texas and California.
One of our favorite verses:
“The steadfast love of the Lord never ceases; His mercies never come to an end; they are new every morning; great is Your faithfulness. ‘The Lord is my portion,’ says my soul, ‘therefore I will hope in Him.’ ” Lamentations 3:22-24