Day 5: Rhythms and Fluids

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Leo’s temperature was great last night, so this morning they took out the temperature probes out of his nose and mouth. They then took off the cerebral sat monitor (the big band on his head), so Leo began to look more like himself!

After rounds they stopped his morphine infusion, and they are now only giving it to him orally as needed. They also turned the Milrinone down to .25 mcg (the lowest dose).

This morning he was still having rhythm issues. The doctor said he was having an idioventricular rhythm, due to his heart possibly being irritated from surgery (they echos aren’t showing any issues). As we left tonight, we didn’t see it happening, so maybe it will go away tomorrow.

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This morning the nurse noticed that the drainage from his chest tubes was “milky”. So they sent the fluids away for testing to see if it was chylothorax (a fluid that the lymphatic system makes; it would mean that his thoracic duct got nicked during surgery. Tonight the fellow said that the test came back positive, so Leo has to be put on a fat-free formula, called Portagen, for the next 2-6 weeks to allow the thoracic duct to heal. We’re praying that this diet will work, otherwise the next option would be IV nutrition (surgery is the last option).

Other than that, Leo has been doing great! There’s talk of him moving up to the Step Down room tomorrow. Since he’s off of morphine and sedatives, he’s been a lot more alert and aware when he wakes up, though he still sleeps most the day. He also is getting more vocal.

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As we look around his room, we see a baby on ECMO while another has been in CICU for 5 weeks. It is a simple reminder that we have so much to be thankful for, even despite minor complications!

We had supper with a couple down the hall tonight, and had a great time laughing and sharing about our cardiac kids. We’re really enjoying all of the families we are meeting!

“I know the Lord is always with me. I will not be shaken, for He is right beside me. No wonder my heart is glad, and I rejoice.” Psalm 16:8-9

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4 Comments on “Day 5: Rhythms and Fluids

  1. Love the verse you posted. Praying for your little man blessing to see him looking so good.

  2. Sorry to hear about the chylothorax… but in the pictures Leo looks amazing! I hope he continues to improve so he can go up to 4D tomorrow. 🙂

  3. We at Northcreek are following with interest your saga with little Leo. We are praying diligently for his complete recovery. Soon you will be chasing him down as he eagerly makes up for this time in bed.

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