“Oh give thanks to the LORD, for He is good; for His steadfast love endures forever!” 1 Chronicles 16:34
Last night Leo’s temperature went up to 40*C/104*F (probably due to shock), so they put him on a cooling pad and kept him on muscle relaxers (in other words temporally paralyzed) which brought his temperature down to 37-38*C.
This morning he was also having rhythm issues. His heart rate would fluctuate between 80 to 130 bpm causing his pressures to go between 50 and 80. They put Leo on nitroproprusside (or NipRide) to help his blood pressure go down, and he is very responsive to it! The pacing team came and changed some rhythm stuff with his pacemaker, so we’ll see if that will fix things.
Leo also had an echo which we are waiting to hear results from.
This evening Leo’s nurse took him off the cooling mat, and put a bag of ice on his head instead. We’re hoping to when him off the muscle relaxants soon.
Leo is looking and doing really great! He still is “asleep” and seems to be coping well with pain (thanks to the constant morphine infusions and the extra bolus lol). His legs and face are swollen, but his nurse said thats normal for being on the bypass machine for so long.
They want him to stay on the ventilator for a while, as they still want his body to rest. So right now we are just keeping down his temperature and will hopefully begin feeds through the NG tube as soon as he comes off the muscle relaxers.
Every time we go to see Leo the nurses put him in different positions, and this is how we found him tonight after supper, all propped up with his stuffed animals and a diaper under his ice bag lol! Such a cutie!
Hoping to go out to coffee soon with the parents of the baby across from Leo. Please be praying for Baby “S”, a 5 week old with HLHS who is still recovery from heart surgery. His parents finally were able to hold him today!